If you’re looking for the feel good, light-hearted, quirky Friday’s Note or a set of scenic pictures then this edition is not for you. You might as well turn back now until my next posting.
I'm sure what I'm about to share isn't a unique experience to me or my family. Truth be told, I'm just writing this for myself. Perhaps trying to make sense of the senseless.
For the last couple of years, my mother has been getting forgetful. Given that she is 89 and lived on her own until this past January. She was still doing well. She had her weekly pattern of laundry on Tuesday mornings, card games Wednesday afternoons and Mass every Sunday. Each time I called she quickly recognized my voice and would engage Jill and the girls in conversations as well. Sure, some stories would be repeated occasionally, but by and large, she was doing well.
For me that changed in a measurable way this past Thanksgiving as we visited for the holiday. While still engaging with everyone and knowing Jill, the girls and me she often struggled to come up with names of other family members. It just so happened that her condo building was replacing the elevator this January. Living on the third floor, she would physically not be able to climb the stairs multiple times a day. Thus, my sister and brother-in-law had my mom move in with them just after Christmas. When speaking with her on the phone after that I noticed she had more trouble coming up with names of my brother and sisters. She would eventually get the names, but it required effort.
It was even more pronounced when talking with her on my birthday in February. It was then I decided I needed to visit again. Waiting until the next Thanksgiving would simply be too long. As I was trying to find a time to go to Pittsburgh for a visit, my sister texted the sibling gang and asked who might be able to stay with mom when they were going to visit my nephew in Virginia. My other sister was going to be out of town on business and work had my brother swamped as well. I figured I could work remotely and visit with my mom at the same time. So, I talked to Jill who encouraged me to go and I booked a ticket that very night.
My brother-in-law and my siblings filled me in on incidences showing mom’s progression. For instance, at times she believes she is staying at a boarding house. Her great-grandchildren who live on the same street are two little boys that she often can’t name. And most days start as Sunday with her getting dressed up and waiting for my brother to take her to Mass. A real-life groundhog's day.
So now being in the ‘burgh again and seeing first hand her memory decline was real and pronounced from just this past Thanksgiving, the last time I was with her. I took over the duties my sister and her husband had been performing. One was to remind her to take her two eye medications, one for both eyes twice a day and one for left eye two times a day. I had to reminder her again and again that she already did her drops earlier.
Then there were two observations I made that really showed the impact of the memory loss. The first was when I was sitting in the sister’s dining room (my office for the week) and I was on a conference call with my headset on. Just prior to the call mom walked in with the mail. Nine pieces of mail: 5 letters and 4 cards (it was special election nightmare time in western PA). During the next thirty minutes of my call I watched as she studied each piece of mail and then set it aside. Then as she worked through the last piece she would start over again, rereading each line of content on each letter or card and creating a new stack. Again and again, she would do this through my half hour call.
That is when it hit me.
That's not my mom.
The same woman who balanced her checkbook to the penny every month of her life was now befuddled by the daily mail. "No mum, you already put your eye drops in this morning." So I settled into the pattern of the week. “No mum, today is Wednesday. Rob will come on Sunday to take you to Mass.” I would then make the two of us breakfast, then jump on my conference calls, then take a break for lunch.
Here is a picture I snapped of my lunch buddy for the week. “No mum, you already took your eye medicine earlier today.”
As I would work, mom studied the newspaper, never seeming to get to the end of the paper. “Brian, I don’t understand these directions. They make no sense,” she said as she was looking at the eye drops again. “Mum, you put in the eye drops earlier today.”
The second observation came when mom and I went out to dinner Saturday night. She studied the menu intently as if she had to. As if without reading every word describing the dish she wouldn’t know what it was. The waitress came asking what drinks we wanted. That question threw my mom. The waitress looked at me as if to ask, ‘is everything alright?’ and my return nod responded, ‘please be patient.’ After having the waitress come back I ordered for the two of us to help both mom and the waitress. When waiting for our dinner we were talking, and I was telling a story and mentioned Jill. Mom said, “Jill?” with a quizzical look. I could see her working on the name as if she was parsing through each letter one at a time. I said yes, Jill, my wife. She then responded, “Your wife?” She then asked, “Well who am I married to?” My Dad passed away in 2009. I said “Bob. Robert Steele.” That was met with the same quizzical look.
I said, "It's ok mum."
"No It's Not" she sharply said in frustration.
This was the low point of the trip.
Later that night we got back to the 'boarding house.' "Yes mum, it's time for your eye drops..... that's ok, I'll help you with the directions."
A little later on she then shuffled over to me and I looked up. She cupped each side of my face and saying, “I love you. I wish you didn’t live so far away.”
Now that is my mom!
My sister and brother-in-law got back from their trip. I was then helping to move the family room couch. When we tilted it back my mom sitting across the room gasped, “Oh… pick up that hundred-dollar bill under there!” and I looked under the couch at the two dust bunnies and otherwise bare floor. When I looked back at her, she had that wry ‘made ya look’ smile on her face. She is still in there. Somehow age has just put a cloud over the memories… or as they say in Pittsburgh ‘It's partly cloudy in Allegheny county.’ Sometimes the sun comes out and the memories and thoughts are there and sometimes they are not.
For those of you now needing a more uplifting story of my mom feel free to read this older post.
My sister called last Saturday. She said to me, "Guess who picked UMBC (16 seed) over Virginia (1 seed)?"
Yep – my mom!